I'm feeling a little torn about my last entry, mostly because I don't want to come off as out of line. First, because I DO appreciate the concern and curiosity of people who meet my beautiful son. And with a smile like this one, we get a lot of strangers coming over to say hi:
I understand curiosity. I'm not sure I would ask a stranger what is wrong with their child, but I certainly get why someone would wonder.
I also really don't mind answering questions about his disease. But I wish I knew HOW to answer them. In a way that was short, to the point, and un-scary to the uninformed. And at the same time, I wish I never had to answer a single question about it ever again.
And then today, I was reading a friend's blog, and clicked on one of her links. It took me to the blog of a woman who just gave birth to a baby with a cleft palate and lip. And I thought, "Well, fuck. I'm worried about explaining a mark on my son's skin?!?! What the hell is my problem?"
And so, I got over myself. At least for now.